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The Challenge of Community Representation: Lessons From Six HIV Clinical Research Community Advisory Boards in Uganda.

The Challenge of Community Representation: Lessons From Six HIV Clinical Research Community Advisory Boards in Uganda.
Author Information (click to view)

Lawrence C, Stewart K,


Lawrence C, Stewart K, (click to view)

Lawrence C, Stewart K,

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Journal of empirical research on human research ethics : JERHRE 2016 8 23() pii

Abstract

Although community advisory boards (CABs) are widely used in clinical research, there is limited data regarding their composition and structure, especially in Africa. Our research provides the first qualitative study of the membership practices, selection methods, and qualifications of the six major HIV research centers that comprise the Ugandan National CAB Network (UNCN). Researchers conducted interviews (n = 45) with CAB members and research liaisons at each of the sites. While selection practices and demographics varied between the sites, all six CABs exclusively followed a broad community membership model. Results suggest successful CABs are context dependent and thus distinct guidelines may be needed based on variables including CAB funding level, representation model, and research focus.

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