To develop and test feasibility of a framework of patient-important practical issues.
Guidelines and shared decision-making tools help facilitate discussions about patient-important outcomes of care alternatives, but typically ignore practical issues patients consider when implementing care into their daily routines. Using grounded theory, practical issues in the HealthTalk.org registry and in Option Grids were identified and categorized into a framework. We integrated the framework into the MAGICapp, and digitally structured authoring and publication platform and appraised its use in BMJ Rapid Recommendations.
The framework included the following 15 categories: medication routine, tests and visits, procedure and device, recovery and adaptation, coordination of care, adverse effects, interactions and antidote, physical well-being, emotional well-being, pregnancy and nursing, costs and access, food and drinks, exercise and activities, social life and relationships, work and education, travel and driving. Implementation in 15 BMJ Rapid Recommendations added 283 issues to 35 recommendations. The most frequently used category was Procedure and device, and the least frequent Social life and relationship.
Adding practical issues systematically to evidence summaries is feasible and can inform guidelines and tools for shared decision making. How this inclusion can improve patient-centered care remains to be determined.
Copyright © 2020. Published by Elsevier Inc.