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Development of an Index of Engagement in HIV Care: An Adapted Internet-Based Delphi Process.

Development of an Index of Engagement in HIV Care: An Adapted Internet-Based Delphi Process.
Author Information (click to view)

Johnson MO, Koester KA, Wood T, Neilands TB, Pomeranz JL, Christopoulos KA,


Johnson MO, Koester KA, Wood T, Neilands TB, Pomeranz JL, Christopoulos KA, (click to view)

Johnson MO, Koester KA, Wood T, Neilands TB, Pomeranz JL, Christopoulos KA,

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JMIR research protocols 2017 12 056(12) e224 doi 10.2196/resprot.8520

Abstract
BACKGROUND
Improving engagement in medical care among persons living with human immunodeficiency virus (HIV) is critical to optimizing clinical outcomes and reducing onward transmission of HIV. However, a clear conceptualization of what it means to be engaged in HIV care is lacking, and thus efforts to measure and enhance engagement in care are limited.

OBJECTIVE
This paper describes the use of a modified online Delphi process of consensus building to solicit input from a range of HIV and non-HIV researchers and providers, and to integrate that input with focus group data conducted with HIV-infected patients. The overarching goal was to generate items for a patient-centered measure of engagement in HIV care for use in future research and clinical practice.

METHODS
We recruited 66 expert panelists from around the United States. Starting with six open-ended questions, we used four rounds of online Delphi data collection in tandem with 12 in-person focus groups with patients and cognitive interviews with 25 patients.

RESULTS
We recruited 66 expert panelists from around the United States and 64 (97%) were retained for four rounds of data collection. Starting with six open-ended questions, we used four rounds of online Delphi data collection in tandem with 12 in-person focus groups with patients and cognitive interviews with 25 patients. The process resulted in an expansion to 120 topics that were subsequently reduced to 13 candidate items for the planned assessment measure.

CONCLUSIONS
The process was an efficient method of soliciting input from geographically separated and busy experts across a range of disciplines and professional roles with the aim of arriving at a coherent definition of engagement in HIV care and a manageable set of survey items to assess it. Next steps are to validate the utility of the new measure in predicting retention in care, adherence to treatment, and clinical outcomes among patients living with HIV.

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