Caring for a kid on home parenteral nutrition (HPN) is difficult, and the emotional effect is often underestimated. This study looked at the emotional well-being and coping skills of HPN parents and children. Data from questionnaires were obtained from parents of HPN-affected children. Children aged 8 and above completed the updated children’s anxiety and depression measure. The survey was completed by 20 parents and 14 children. When compared to parents of children with other chronic illnesses, parents reported a higher mean PIP difficulty and frequency score of 117.9 and 124, respectively. PIP scores were considerably higher in youngsters who were also tube fed. Thirty-five percent of parents scored over the clinical threshold on the anxiety subscale of the Hospital Anxiety and Depression Scale, with the remaining 30 percent falling into the borderline range. On the depression subscale, 15% scored over the clinical threshold range, while 15% scored borderline. The mean anxiety and sadness scores of parents of children with SBS were substantially higher than those of children with neuromuscular illness. Coping strategies varied depending on the child’s health and whether he or she was enterally fed.
Since caring for a kid has a major emotional impact on HPN, screening and treatment of anxiety, sadness, and stress should be a normal component of care. Individual requirements of the kid and parent must be considered while giving the most suitable psychological assistance.
