"It is always HIV/AIDS and TB": Home-based carers’ perspectives on epilepsy in Cape Town, South Africa.

Author Information (click to view)

Keikelame MJ, Swartz L,

Keikelame MJ, Swartz L, (click to view)

Keikelame MJ, Swartz L,


International journal of qualitative studies on health and well-being 2016 6 0111() 30213 doi 10.3402/qhw.v11.30213


The study highlights the complex cultural religious factors affecting epilepsy and a need for integrated home-based care services. Two focus group discussions exploring home-based carers’ (HBCs) perspectives on epilepsy were conducted using a semi-structured focus group interview guide, which was based on Kleinman’s explanatory model framework. The audio-recorded data were transcribed verbatim, and a thematic analysis was done. The three main themes were epilepsy names and metaphors, religious beliefs about the cause and treatment of epilepsy, and HBCs’ perceived roles and strategies for engaging in epilepsy care. Findings provide some insights for research, policy, and practice.

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