Pediatrics international : official journal of the Japan Pediatric Society 2017 02 06() doi 10.1111/ped.13256
Improvements in neonatal medicine and pediatric emergency medicine has led to increasing number of children with severe disabilities requiring medical care, such as tracheal suction, on a daily basis. Most of these children, discharged directly from hospitals to their parents’ homes, need home medical support. To provide data for the establishment of appropriate support systems we analyzed the care for such children through a time study conducted at an institution.
We performed a minute-by -minute time study of the work of 33 staff members in a ward for patients (medically-dependent SMID) requiring frequent medical care over 48 hours in order to analyze patient care. Data was compared with that from a ward for ordinary non-medically-dependent SMID patients.
Time of life care for medically-dependent SMID and ordinary SMID was almost the same. However, time of medical care for the former was 10 times longer than that of the latter. Also, tasks involving information exchange and making record of the time of care were performed 4 times more frequently in a ward of medically-dependent SMID than in ordinary SMID ward.
Medically-dependent SMID children and adults, predominantly with tracheostomies, needed much more medical care and more concentrated involvement of the staff compared to ordinary SMID. This study provides valuable data to be used in the development of support systems for medically-dependent SMID children being taken care of at home. In addition, it sheds light on the situation faced by non-SMID children requiring frequent medical care. This article is protected by copyright. All rights reserved.