Several health research agendas have successfully been developed with adults but rarely with children. Children are still seldom recognized as possessing credible knowledge about their own body and life. The objective is to understand the research priorities of Dutch children with juvenile idiopathic arthritis (JIA), within a nationwide research agenda-setting exercise for JIA with patients, parents and clinicians, as well as researching how children can be involved.
A qualitative study, with focus group discussions and interviews, as a qualitative addition to the James Lind Alliance (JLA) approach.
Children with JIA appreciated being invited to give their opinion on JIA research prioritization as knowledgeable actors. They have clear views on what topics need most attention. They want more insight on how to medically and socially treat JIA so that they can better fulfill their aspirations at school, later in work, and with their relationships.
We have identified the top five research priorities for children with JIA. Most priorities are unique and differ from the priorities of the adolescents and young adults, parents and healthcare professionals in the main JLA priority setting exercise. Ultimately, two of the children’s priorities were included in the final JLA Top Ten.

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