How Fair Is the Standard of Care?
If every patient is unique, can an overarching metric really be pinned down enough to declare that a given doctor was negligent as a legal certainty?
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Inherited Retinal Disease – Inherited Retinal Disease – Janssen- IRD- DEC Display Banners HCP Wallboard Extension – 2023 – 59304
With Bardet-Biedl Syndrome, Adaptive Skill Delays May Be Especially Challenging
Developmental delays are a widely recognized feature of Bardet-Biedl syndrome (BBS); however, there is little research on the challenges faced by people with BBS.
Read MoreStudy Examines Differences in ABCA4-Associated Retinopathies
Certain phenotypes across the spectrum of ABCA4-associated retinopathies (ABCA4R) have preferential photoreceptor degeneration, while others have substantial alterations in the retinal pigment epithelium (RPE) and...
Read MoreMost Carriers of X-Linked IRDs Experience Guilt, Worry & Anxiety
Most women who are carriers of X-linked inherited retinal diseases (IRDs) experience negative emotions about their child’s vision and their own vision, according to a study published in Clinical Genetics. Lauren Ayton, PhD,...
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