Inflammatory bowel disease (IBD) is a chronic inflammatory illness of the gastrointestinal system. To improve their health, some people undergo ostomy surgery. This study looked at how young IBD patients evaluated their medical and psychosocial educational requirements in relation to ostomy surgery. This mixed-methods study includes qualitative interviews with pediatric patients and caregivers, as well as demographic/medical data gathered from medical records. The average age of the participants was 15.62 years. The average time between diagnosis and treatment was 4.5 years. The interviews were recorded, transcribed, and coded. The major codes of Ostomy Surgery, Preoperative Concerns, Postoperative Concerns, Education Preferences, and Social Concerns were found by qualitative coding of narratives, with different subcodes. Unfamiliarity with ostomies, desires for instruction from a medical practitioner, and psychological concerns were all coded.
According to the findings, young IBD patients have a poor grasp of ostomies and a limited understanding of their educational choices. These findings emphasize the significance of developmentally appropriate information in ostomy education.
Reference:https://journals.lww.com/jpgn/Fulltext/2020/06000/The_Perceived_Ostomy_Educational_Needs_of.28.aspx
