As human and economic resources are limited, especially in Latin America (LATAM), it is important to identify research priorities to improve multiple sclerosis (MS) patients care in the region. The objective was to generate a multidisciplinary consensus on research priorities in MS for patients care in LATAM by involving healthcare professionals and MS patient associations. METHODS: consensus was reached through a four-step modified Delphi method designed to identify and rate research priorities in MS in LATAM. The process consisted of two qualitative assessments, a general ranking phase and a consensus meeting followed by a more detailed ranking phase RESULTS: a total of 62 participants (35 neurologists, 4 nurses, 12 kinesiologists, 7 neuropsychologists and 4 patient association members) developed the process. At the final ranking stage following the consensus meeting, each participant provided their final rankings, and the top priority research questions were outlined. 11 research priorities were identified focusing on healthcare access, costs of the disease, physical and cognitive evaluation and rehabilitation, quality of life, symptoms management, prognostic factors, the need of MS care units and patient’s management in emergencies like COVID-19. CONCLUSION: this work establishes MS research priorities in LATAM from multiple perspectives. To pursue the actions suggested could launch the drive to obtain information that will help us to better understand the disease in our region and, especially, to better care for affected patients.Copyright © 2021. Published by Elsevier B.V.
About The Expert
Juan I Rojas
Edgar Carnero Contentti
Patricio Abad
Adriana Aguayo
Ricardo Alonso
Johana Bauer
Jefferson Becker
Andrea K Bustos
Claudia A Carcamo
Adriana Carra
Edgard P Correa Diaz
Jorge Correale
Edgardo Cristiano
Alejandro J Diaz
Nora Fernandez Liguori
Jose Flores
Manuel Fruns
Orlando Garcea
Susana M Giachello
Melisa D Godoy
Fernando Gracia
Victor F Hamuy
Paula R Henestroza
Javier A Navarra
Carlos Navas
Liliana Patrucco
Magdalena Perez Bruno
Andrea S Prato
Victor M Rivera
Alma R Rosa Martinez
Sandra Vanotti
Macarena Vazquez
Darwin Vizcarra
Maria C Ysrraelit
Marina Alonso Serena
References
PubMed