The inflammatory bowel disease (IBD)-disk is a 10-item self-questionnaire that is used to assess IBD-related disability. The aim of the present study was to evaluate this tool in the assessment of IBD daily-life burden.
A one-week cross-sectional study was conducted in 42 centres affiliated in France and Belgium. Patients were asked to complete the IBD-disk (best score: 0, worst score: 100) and a visual analogue scale (VAS) of IBD daily-life burden (best score: 0, worst score: 10). Analyses included internal consistency, correlation analysis and diagnostic performance assessment.
Among the 2011 IBD outpatients who responded to the survey (67.8% of the patients had Crohn’s disease), 49.9% were in clinical remission. The IBD-disk completion rate was 73.8%. The final analysis was conducted in this population (n= 1455 patients). The mean IBD-disk score and IBD daily-life burden VAS were 39.0 ± 23.2 and 5.2 ± 2.9, respectively. The IBD-disk score was well-correlated with the IBD daily-life burden VAS (r=0.67; p5) was 0.81 (CI95%: 0.79-0.83; p<0.001).
In a large cohort of patients, the IBD-disk score was well correlated with IBD daily-life burden, and it could be used in clinical practice.

© The Author(s) 2020. Published by Oxford University Press on behalf of European Crohn’s and Colitis Organisation. All rights reserved. For permissions, please email: